You already knew the press went hog-wild with the Terry Schiavo story. Remember? Ms Schiavo (right) falls into a persistent vegetative state for years; family opinion fractures along 'She's brain dead'/'No she's isn't' lines; right-wing politicians glom on to the story and hold it up as proof positive of the evils of legalized euthanasia, bringing their agendas all the way to Congress; she finally dies in 2005 after a judge rules in favour of her husband, who requested her feeding tube be removed -- and all the while journalists spread the story around the world in various sensational iterations, fanning the flames of public outrage (and mass confusion) ever higher.
It may not surprise you to learn that those news stories were, as often as not, far from accurate. But you'll be shocked to learn just how extensive the errors were.
This latest review of the Schiavo media coverage is part of a new study by a team of neuroethicists from McGill and Stanford, published online on Wednesday in the journal Neurology (subscription required).
Looking at The New York Times, The Washington Post, the St.-Petersburg Times and The Tampa Tribune, the research team, led by Eric Racine, PhD, of the Institut de recherches cliniques de Montréal, found that 21% of articles claimed, incorrectly, Ms Shiavo's condition would improve (it didn't). The researchers also found: Statements explicitly denying the PVS diagnosis were found in 6% of articles. Explanations of PVS and other chronic disorders of consciousness were rare ([less than] 1%). Most frequently cited descriptions of behaviors were that the patient responds (10%), reacts (9%), is incapacitated (6%), smiles (5%), and laughs (5%). Withdrawal of life support was described as murder in 9% of articles.
An earlier study of related New York Times articles published in 2005 found that fully 62% erred in explanations of "brain death," writes Dartmouth College neurologist James L Bernat in an accompanying editorial titled "Terry Schiavo's Tragedy and Ours, Too." He continues:Because print and broadcast media reports influence public perception and opinion about medical conditions, they have a social responsibility to educate by accurately explaining the basic facts necessary to understand the issues.
The solution, conclude both Dr Racine and Dr Bernat, is to encourage broader engagement between neurologists and the public, via the press, when it comes to discussing complex cases like Schiavo's.
But can that solution really help? Dr Bernat admits that although "[s]ome responsible media outlets did attempt to educate readers, viewers, or listeners but many treated the dispute as entertainment."
After all, in an era of declining newspaper readerships and dwindling circulations, isn't entertainment increasingly becoming a priority for many news editors? Undoubtedly.
But perhaps studies like this one, which highlight and publicize the shortcomings and outright failures of large media corporations, might help to remedy the problem by making readers aware of the difference between responsible reporting and entertaining writing -- not that the two are mutually exclusive in the least, but the take-away message is that a balance must be struck, and entertainment mustn't be allowed to trump a full airing of the truth.
Photo: CBC News
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Friday, August 8, 2008
Media coverage of Schiavo case was disastrous: Canadian study
Posted by
Sam Solomon
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12:49 PM
Labels: ethics, euthanasia, journalism, law, media, neurology
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1 comments:
This comment highlights the impact of media at several different levels with a focus on how "values" is the pivot.
Title: Perspectives on values-based evidence
We know about 'values-based practice' which is expected to be 'evidence-based practice'...…. now you are opening a NEW challenge to the media……
” values-based evidence”.
How could this be accomplished?
1. The Academic challenge to the media:
A focus on “values-based evidence”
PASTE ( note asterisked comments)
Racine points out that while in the 60’s and 70’s people mostly rallied over the right to refuse treatment, an opposite pressure was applied in the Schiavo Case by relatives and public opinion.
“This case is quite original because it reveals the emergence of a pro-life social stream,……..
a trend that has now reached Canada,”
adds the researcher.
For their misunderstanding of the subject matter or their bias, are journalists to be blamed?
……”Mass media have become a space of complex social interaction where the public takes its information and reacts to it.”
However, Internet and the media cannot replace official sources, be they medical, legal or political. In order to improve the quality of the information that is relayed to the public, families and key-actors, specialists must adopt strategies that will take into account the limitations identified in the media coverage of the Schiavo Case. Such ethical and medical debates would certainly benefit from
…..”information that is both more accurate and more accessible to the layperson.”
The solution, conclude both Dr Racine and Dr Bernat, is to encourage broader engagement between neurologists and the public,
……” via the press”……
when it comes to discussing complex cases like Schiavo's
END OF PASTE
2. The Media challenge to respond:
With a focus on venue (i.e. a place that people “ come to” ….. not where you go to them) let’s look at the classic marketing challenges:product, place ( distribution channels), price
Q-Where is there a “ buy-in” for physicians to transmit “ values-based evidence” to others?
Examples:
ONE:
Dr Ian Furst, of Wait Time & Delayed Care, on Web 2.0:
In short, people want you to believe that when your doctor (or primary care provider) embraces Web 2.0 (the socialization of the internet) a metamorphosis of medicine will occur. The argument goes that the internet will allow your doctor to reach more people with greater richness then ever before. Don’t believe them – it’s bullshit. [...] The pundits foresee a revolution that will never come.
TWO:
Q-How is this site doing?
visit this address:
http://canadianmedicine.blogspot.com/2008/04/putting-clinical-depression-under.html
THREE:
Q- How can the recipient be trained to “recognize “ values-based evidence?
http://criticalsnips.wordpress.com/category/postman/
Excerpt
Sensitivity to the phony uses of language requires, to some extent:
+ knowledge of how to ask questions,
+how to validate answers, and certainly,
+how to assess meanings.
FOUR:
Q- What could be more sobering than the broad impact on society, academia and current values than this media reporting incident?:
http://psycnet.apa.org/index.cfm?fa=buy.optionToBuy&id=2007-13085-001
PASTE
Manning, Rachel; Levine, Mark; Collins, Alan. The Kitty Genovese murder and the social psychology of helping: The parable of the 38 witnesses. American Psychologist
This article argues that an iconic event in the history of helping research--the story of the 38 witnesses who remained inactive during the murder of Kitty Genovese--is not supported by the available evidence. Using archive material, the authors show that there is no evidence for the presence of 38 witnesses, or that witnesses observed the murder, or that witnesses remained inactive. Drawing a distinction between the robust bystander research tradition and the story of the 38 witnesses, the authors explore the consequences of the story for the discipline of psychology. They argue that the story itself plays a key role in psychology textbooks. They also suggest that the story marks a new way of conceptualizing the dangers of immersion in social groups. Finally, they suggest that the story itself has become a modern parable, the telling of which has served to limit the scope of inquiry into emergency helping. (PsycINFO Database Record (c) 2007 APA, all rights reserved
END OF PASTE
Comments from discussion sources related to this article:
Scholars of note, Academics, Sociologists( "free rider") had much to say about this pivotal event ( murder of Kitty Genovese) and ultimately defined the behaviour of witnesses as "bystander effect, Genovese syndrome, diffusion of responsibility, " leading Social scientists to the Theory of Social Proof and the "negative" influence of groups.
In 2007 these authors took an investigative approach ( often the focus of Journal articles) and challenged the " analytical" strength of textbook information gleaned from secondary resources ( often a weakness in scientific papers). Thus, taking an evidence-based approach they looked at "reporting" levels and discovered :
+there was only one bystander who was aware of the full event
+there were 6 eye witnesses ( not 38)
+ the police "were" called.... and they came.
These authors recommend real life evidence of positive group functioning as demonstrated by the response to disaster aid and sacrificial giving of individuals and community groups emerge when "caring behaviour is modelled".
They agree work-to-date on "diffusion of responsibility" works in both a negative AND positive direction... and it is good to assign specific duties/ requests to ensure you get help in a crisis.
SUMMARY
we must return FROM…….. being "opportunists" ( strengthening our own position on the back of the work of others)
TO…… creating " opportunities" where old gatekeepers are ? forced/obliged to open those gates.
Q- What relevance has this to this discussion on “ values-based evidence”?
Answer:
We tend to:
+ assign/refer/link oythers to "information sources" that may or may not be current or relevant ( whether it is a scholar, scientist or physician).
We " declare"......... but we do not continue to "share".
Why?
We have a “ marketing” mentality now in healthcare where our values say:
“ have a product that gets me the best price and the largest number of buyers”.
We must move our involvement above the level of patronage ... and on into partnership.... this is what Web 3.0 will create ( reciprocity and trust ?)
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